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The impact of tardive dyskinesia (TD)1-3
Whether symptoms are mild, moderate, or severe, the impact of living with TD can be significant. The involuntary movements of TD may lead to physical, functional, and emotional changes that affect your overall well-being.
You've likely put a lot of effort into treating your mental health condition. If you're feeling frustrated about getting TD, you are not alone. Talk to your healthcare provider about available treatments for TD.
How to tell your providerPhysical impacts include:
Pain and
discomfort
Breathing
difficulties
Walking
difficulties
“I always feel like I’m running short of air, so I either talk lower or […] I end up gasping for it.”
—ROBERT,
real person living with TD
Emotional impacts include:
Stress
Embarrassment
Isolation
“It has affected my balance, my eating, my socializing interactions, and my going back to work.”
—SANDRA,
real person living with TD
Therapeutic impacts include:
Changes in
medications
Changes in
emotional stability
“Most doctors will blow you off if you show symptoms because they don’t want to admit that the drugs they gave you caused this and take responsibility.”
—KATHY,
real person living with TD
Functional impacts include:
Difficulty
writing
Difficulty eating
and swallowing
Speech
problems
Sleep
problems
Speech
problems
Sleep
problems
“If my movements are really bad, then I notice that I get a little strangled at times if I’m eating or drinking.”
—TASHA,
real person living with TD
A personal perspective: Raven’s TD story
This patient has received compensation. Patient image is being used with permission.
TD is not your fault, and it’s treatable2-4
“That yes it is a possible side effect that can come from your medications. That patients need to be aware of what to look for because today there are medications out there. It did not need to become what it was.”
—MARCIA,
real person living with TD
questionnaire
What activities do your movements stand in the way of?1,2*
RESULTS:
Working a full-time job
0%Exercising, such as running or biking
0%Getting a full night’s sleep
0%Going out to eat at restaurants
0%Other
0%None of the above
0%You may be able to treat TD while continuing to manage your mental health.4
Consider talking to your healthcare provider*Information provided will be used only for the purposes of this poll. Answers will be displayed on this website in aggregate and will not personally identify you. If you do not agree to these terms, please do not participate in the poll.
References: 1. Warikoo N, Schwartz T, Citrome L. Tardive dyskinesia. In: Schwartz TL, Megna J, Topel ME, eds. Antipsychotic Drugs. Nova Science Publishers, Inc.; 2013:235-258. 2. Derrow P. What is tardive dyskinesia? Symptoms, causes, diagnosis, treatment, and prevention. Everyday Health. Accessed December 13, 2023. https://www.everydayhealth.com/tardive-dyskinesia/ 3. Waln O, Jankovic J. An update on tardive dyskinesia: from phenomenology to treatment. Tremor Other Hyperkinet Mov (N Y). 2013;3:tre-03-161-4138-1. doi:10.7916/D88P5Z71 4. Solmi M, Pigato G, Kane JM, Correll CU. Treatment of tardive dyskinesia with VMAT-2 inibitors: a systematic review and meta-analysis of randomized controlled trials. Drug Des Devel Ther. 2018;12:1215-1238. doi:10.2147/DDDT.S133205
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