How tardive dyskinesia may impact you

Whether symptoms are mild, moderate, or severe, the impact of tardive dyskinesia (TD) can be significant, causing physical changes that may lead to functional and emotional changes. The symptoms of TD may also impact social well-being, such as avoiding social interactions because of uncontrollable movements.1-3

A patient’s perspective: Raven’s TD story

This patient has received compensation. Patient image is being used with permission.

The impact of TD is far-reaching

While TD affects everyone differently, here are some examples of how TD may impact you1-4:

Physically

  • Pain and discomfort
  • Breathing difficulties
  • Walking difficulties

“I always feel like I’m running short of air, so I either talk lower or […] I end up gasping for it.”

- Robert

Functionally

  • Difficulty writing
  • Speech problems
  • Difficulty eating and swallowing

“If my movements are really bad then I notice that I get a little strangled at times if I’m eating or drinking.”

- Tasha

Emotionally

  • Stress
  • Embarrassment
  • Isolation

“They’ve greatly affected my balance, affected the way I eat, the way I sleep, my social interactions. It’s an embarrassment to me; it’s an embarrassment to other people. It’s affected just about everything in my life. I’m not able to go back to work.”

- Sandra

Therapeutically

  • Changes in medications
  • Emotional stability

Find support for your TD journey.

Register to receive updates and educational resources.

SIGN UP NOW

Tips for talking about TD

  • If you are experiencing unintentional, uncontrollable movements, be honest with friends and family about how you feel and explain how they can support you. Share what you know about TD and try to answer their questions.
  • If a loved one has uncontrollable movements, have an open conversation with them about their movements. Sometimes it’s difficult for those with TD to recognize their symptoms or the impact those symptoms have on their everyday activities.1

What are some questions you may have for your doctor about uncontrollable movements?

Answer this 1-question poll to see how your experience compares to others.

Please check all that apply.*

See Results

*You must make a selection first.

*Information provided will be used only for the purposes of this poll. Answers will be displayed on this website in aggregate and will not personally identify you. If you do not agree to these terms, please do not participate in the poll.

References: 1. Warikoo N, Schwartz T, Citrome L. Tardive dyskinesia. In: Schwartz TL, Megna J, Topel ME, eds. Antipsychotic drugs. Hauppauge, NY: Nova Science Publishers. 2013:235-258. 2. Sharing the impact of tardive dyskinesia. NAMI website. http://notalone.nami.org/post/97568253959/sharing-the-impact-of-tardive-dyskinesia. Accessed July 26, 2019. 3. Understanding TD. Mind website. https://www.mind.org.uk/media/2837360/understanding-tardive-dyskinesia-2015.pdf. Accessed July 26, 2019. 4. Waln O, Jankovic J. An Update on Tardive Dyskinesia: From Phenomenology to Treatment. Tremor Other Hyperkinet Mov. 2013;3:1-11.

You are about to leave tardiveimpact.com and go to a site informing you about a prescription treatment option.

Would you like to continue?

You are about to leave tardiveimpact.com and enter a website operated by a third party.

Would you like to continue?